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Genetic Guidance for EDS & Related Connective Tissue Dysplasias

Clinical and DNA findings of Ehlers-Danlos Syndrome (EDS) can unify care for patients with the joint pain/instability, muscle pain/fibromyalgia, chronic fatigue-anxiety, and more.

ABOUT DR. GOLDER WILSON

MD, PhD & Compassionate Genetic Counselor

Dr. Golder Wilson is a board-certified medical geneticist who became interested in EDS after 40 years of experience with syndromes involving intellectual disability, birth defects, and autism. After scholarship yielding 100 articles and 4 books on ~25,000 patients with the latter disorders, he has described the clinical and DNA findings of 2000-plus EDS patients in another 20 articles and a recent book available at The DNA of Ehlers-Danlos and Long COVID19 Syndromes: Healing Their Flexibility, Fatigue, and Fear: 9798313797625: Medicine & Health Science Books at Amazon.com.

A key part of this scholarship is the development of systematic history and physical forms that survey 120 typical findings of EDS and related disorders, a holistic assessment that allows patients with EDS-dysautonomia symptoms to recognize the underlying medical causes of their illness and to have comprehensive rather than partial diagnoses like fibromyalgia, chronic fatigue syndrome, stress, or—worst of all—psychosomatic or drug-seeking disease.

Patients dismissed or delayed in treatment by physicians unacquainted with EDS or put off by esoteric EDS type-casting can now learn how their tissue laxity causes vessel distensibility, lower body blood pooling, cerebral deficiency, and the reactive autonomic imbalance of POTS (faints, fear, fatigue, fog, tachycardia) and MCAS (rashes-hives, asthma, allergy) due to adrenergic (fight-or-flight) excess plus IBS (irregularity, reflux, nausea) due to cholinergic (rest-and-digest) suppression.

1261

patients seen

120

frequent findings

917

DNA tests analyzed

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FEATURED PUBLICATIONS

Medical Research

Overlapping Genomic Influences and Neuro-Autonomic Mechanisms in Ehlers-Danlos and Long COVID-19 Syndromes

Clinical-DNA correlates of anxiety in patients with Ehlers-Danlos syndrome

CONNECTED CARE PARTNERS

OUR SERVICES

Virtual EDS Information and Genetic Evaluation Service

Dr. Wilson is very excited about a collaborative partnership with patient advocate Christie Cox, BCPA and APRN Katie Volkers who offer a subscription service for EDS patients  for comprehensive care. Video tele health appointment are available for their services and genetic counseling through their partnership programs.

GENETIC TESTING GUIDANCE

Advise and guide client patients and families to reliable, affordable genetic testing for connective tissue panels.

DNA ANALYSIS & INTERPRETATION

Detailed review and interpretation of findings and report generated for medical records to assist in medical provider diagnostic process.

COMPREHENSIVE CARE PARTNER

Partnered with APRN Katie Volkers in referring patients to A to Zebra Health for comprehensive care.

PATIENT ADVOCACY PARTNER

We refer patients to our healthcare navigational guidance partners at Journey2Joyous.com who provide patient advocacy services and effective action planning tools to move your care forward. 

SUSPECT HYPERMOBILITY?

STEP 1

Self evaluate symptoms (as shown) to first recognize the possibility of EDS, then worry about rare findings and types once testing is determined if recommended.

STEP 2

Consider genetic testing. We can help you locate a service and assist with insurance (if covered).

STEP 3

Contact Dr. Wilson for review and documentation evidence to take to your physician. 

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